Two steps forward and now one back

Eli has been doing so well at home. We have been able to adjust to life and now this. We are back in the hospital. Last night we were getting ready to head out for Friday night out with the family. As Maggie says, "I want to do something fun!". So I went to give Eli a bath and upon taking his shirt off discovered what looked like a large purple marble under his scar in his chest.  We instantly called our nurse as well as sent her pictures. She then called back and said pack a bag that we were coming back to the hospital. Sorry Maggie, no fun for us tonight. 




Once at the hospital and settled into our room they took some blood and said now we wait. And wait and sleep(some) and wait. 

Well as it turns out, Eli has an infection in his blood. They will continue to monitor him as well as give him antibiotics. They are concerned with it spreading and so are taking precautions to prevent that. Best case scenario is that his body reacts well to the medicine and a couple of days from now we go home. Worst case scenario is that they have to open him up again and clean the infection out as well as keep him here at the hospital for awhile. 
Obviously we are hoping for the best. In the meantime we continue to wait. 

Eli's Due Date...

(Ok so first I want to apologize for not updating the blog. I have heard from so many of you and really appreciate the desire to keep up with anything that is going on with Eli and us for that matter. Again all of you have been amazing with your love, encouraging words and prayers. Know that I will try harder.)

So yesterday was Eli's official due date. It seems crazy to think that he has gone through so much before the day he was actually supposed to be born. He was born 3 weeks early, had surgery 8 days later, went home 8 days later and has been doing awesome at home. It has been amazing to be at home with him. (don't get me wrong hospital food is the best, ha!)There is one thing that I do miss and that is nurses feeding and changing him in the middle of the night so mom and dad can sleep. Honestly, I forgot about that part. Ok and honestly it is Kati who is up 90% of the time in the middle of the night.

We are slowly transitioning to try and live life as normal as you can with a newborn. We have ventured out of the house a couple of times and usually meet people with questions everywhere we go. "He's so small. Why the feeding tube? How much does he weigh? He is really cute." I usually answer, "Yes he is smaller, he had open heart surgery less than two weeks ago, he is almost 6 lbs and honestly of course he is cute, look at me."

Where do we go from here? - So right now the goal is to get Eli eating more (which he is doing really well on) so he can gain weight and strength and then sometime before the end of the year he will have his second surgery.
Until then I will try and do better about updating his blog with at least pictures.